Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth

Saraff, Vrinda; Arango-Sancho, Pedro; Bacchetta, Justine; Boot, Annemieke-M; Burren, Christine-P; Chinoy, Amish; Dharmaraj, Poonam; Gómez-Llorente, María-Amelia; González-Rodríguez, Juan-David; Gueorguieva, Iva; Hayes, Wesley; Schnabel, Dirk; Duro, Héctor-Ríos; Davies, Elin-Haf; Komarzynski, Sandra; Rylands, Ángela-J; Sandilands, Kerry; Ishii, Haruka; Williams, Ángela; Selveindran, Santhani; Barlassina, Adele; Bowden, Annabel; Linglart, Agnès

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dc.contributor.author	Saraff, Vrinda
dc.contributor.author	Arango-Sancho, Pedro
dc.contributor.author	Bacchetta, Justine
dc.contributor.author	Boot, Annemieke-M
dc.contributor.author	Burren, Christine-P
dc.contributor.author	Chinoy, Amish
dc.contributor.author	Dharmaraj, Poonam
dc.contributor.author	Gómez-Llorente, María-Amelia
dc.contributor.author	González-Rodríguez, Juan-David
dc.contributor.author	Gueorguieva, Iva
dc.contributor.author	Hayes, Wesley
dc.contributor.author	Schnabel, Dirk
dc.contributor.author	Duro, Héctor-Ríos
dc.contributor.author	Davies, Elin-Haf
dc.contributor.author	Komarzynski, Sandra
dc.contributor.author	Rylands, Ángela-J
dc.contributor.author	Sandilands, Kerry
dc.contributor.author	Ishii, Haruka
dc.contributor.author	Williams, Ángela
dc.contributor.author	Selveindran, Santhani
dc.contributor.author	Barlassina, Adele
dc.contributor.author	Bowden, Annabel
dc.contributor.author	Linglart, Agnès
dc.date.accessioned	2026-04-20T09:45:36Z
dc.date.available	2026-04-20T09:45:36Z
dc.date.issued	2026-02-03
dc.identifier.citation	Saraff V, Arango-Sancho P, Bacchetta J, Boot AM, Burren CP, Chinoy A, et al. Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth. Orphanet J Rare Dis. 3 de febrero de 2026. doi:10.1186/s13023-026-04244-2
dc.identifier.issn	1750-1172
dc.identifier.uri	https://sms.carm.es/ricsmur/handle/123456789/25964
dc.language.iso	eng
dc.publisher	SPRINGERNATURE
dc.rights	Atribución/Reconocimiento 4.0 Internacional
dc.rights.uri	https://creativecommons.org/licenses/by/4.0/deed.es	*
dc.title	Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth
dc.type	info:eu-repo/semantics/article
dc.identifier.pmid	41634723
dc.relation.publisherversion	https://link.springer.com/10.1186/s13023-026-04244-2
dc.type.version	info:eu-repo/semantics/publishedVersion
dc.identifier.doi	10.1186/s13023-026-04244-2
dc.journal.title	Orphanet journal of rare diseases