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Haemo-Adhaesione: A New Measure of Adherence for Adolescent and Adult Patients with Haemophilia

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dc.contributor.author Torres-Ortuno, Ana
dc.contributor.author Cuesta-Barriuso, Rubén
dc.contributor.author Nieto-Munuera, Joaquin
dc.contributor.author Castiello-Munuera, Alvaro
dc.contributor.author Moreno-Moreno, Manuel
dc.contributor.author López-Pina, José-Antonio
dc.date.accessioned 2025-05-09T10:08:55Z
dc.date.available 2025-05-09T10:08:55Z
dc.date.issued 2020
dc.identifier.citation Torres-Ortuño A, Cuesta-Barriuso R, Nieto-Munuera J, Castiello-Munuera Á, Moreno-Moreno M, López-Pina JA. Haemo-Adhaesione: A New Measure of Adherence for Adolescent and Adult Patients with Haemophilia. Patient Prefer Adherence. 2020;14:455-65.
dc.identifier.issn 1177-889X
dc.identifier.uri https://sms.carm.es/ricsmur/handle/123456789/19018
dc.description.abstract PURPOSE: To build a multidimensional questionnaire of adherence for a patient with hemophilia that includes not only clinical but also psychosocial aspects. PATIENTS AND METHODS: One hundred and forty-six patients with haemophilia (A and B) were recruited from several Hemophilia Treatment Centers for this study. The recruitment was performed through a personal interview (20-25 mins for each patient). A literature review was carried out (different databases). In the first version (136 items), all items were subjected to an external judgment (experts in hemophilia) and also presented and discussed with a group of patients. It was made a study of content validity and homogeneity index and reliability coefficients of score were calculated with an alpha coefficient. Empirical validation was made with Pearson correlation. RESULTS: The Haemo-Adhaesione scale was composed of 5 dimensions and 10 questions about basic haemophilia concepts. It was shown to be valid and reliable to assess adherence in the Spanish population. Its internal consistency was good in all dimensions. The Rasch model was used to confirm the multidimensional structure of the scale. Significant and negative correlations were observed with the VERITAS-Pro and VERITAS-PRN scale in all dimensions, and in the total score. CONCLUSIONS: The Haemo-Adhaesione scale is a good measure of adherence for PWH. Its multidimensional structure favors the inclusion of the objective and subjective aspects implicit in its definition, as well as its dynamic nature. Patients with greater adherence are those who have more awareness of their disease, and as a result, they are more compliant with prescription and their self-care. It also discriminates between patients who follow one treatment or another.
dc.language.iso eng
dc.publisher DOVE MEDICAL PRESS LTD
dc.rights Atribución-NoComercial-SinDerivadas 4.0 España
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es *
dc.title Haemo-Adhaesione: A New Measure of Adherence for Adolescent and Adult Patients with Haemophilia
dc.type info:eu-repo/semantics/article
dc.identifier.pmid 32184574
dc.relation.publisherversion https://dx.doi.org/10.2147/PPA.S233601
dc.type.version info:eu-repo/semantics/publishedVersion
dc.identifier.doi 10.2147/PPA.S233601
dc.journal.title Patient Preference and Adherence


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