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Listar02.01.01. Investigación y comunicación científica por tema "Needs Assessment"

Listar02.01.01. Investigación y comunicación científica por tema "Needs Assessment"

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  • Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents 
    Plaza-Fornieles, Mercedes; García-Marcos-Barbero, Patricia; Galera-Miñarro, Ana-María; Barbieri, Giorgio; Bellavia, Noemi; Bermúdez-Cortes, Mar; Navarro-Mingorance, Álvaro (EDICIONES DOYMA S A, 2020-07)
    INTRODUCTION: The care at the end of children's lives must be sensitive to the needs of the child and their family. An understanding of the illness is required from the perspective of parents faced with the death of their ...
  • Evolution of tyrosinemia type 1 disease in patients treated with nitisinone in Spain 
    Luz-Couce, María; Sánchez-Pintos, Paula; Aldamiz-Echevarria, Luis; Vitoria, Isidro; Navas, Victor; Martin-Hernández, Elena; García-Volpe, Camila; Pintos, Guillem; Peña-Quintana, Luis; Hernández, Tomás; Gil, David; Sánchez-Valverde, Félix; Bueno, María; Roca, Iria; López-Ruzafa, Encarna; Díaz-Fernández, Carmen (LIPPINCOTT WILLIAMS & WILKINS, 2019-09)
    Treatment with nitisinone (NTBC) has brought about a drastic improvement in the treatment and prognosis of hereditary tyrosinemia type I (HT1). We conducted a retrospective observational multicentric study in Spanish HT1 ...

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